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Pediatric PID BMT Caregiver survey

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We hope you will consider completing this survey being conducted by Dr. Christina Mangurian, a UCSF clinician scientist who was also a caregiver for her 10 month-old son who received a bone marrow transplant in 2012 for Wiskott-Aldrich Syndrome. For more information about her background and research interests visit: Dr. Christina Mangurian

In this survey, we will try to get your valuable perspective on how the health care system can better provide psychosocial support for caregivers like you during the BMT hospitalization. We believe your insights could really help make a difference for other families.

This anonymous and voluntary survey will take about 15-20 minutes to complete and can be discontinued at any time. To be eligible for this study, you must live in the US and had a child who has undergone bone marrow transplantation for a primary immunodeficiency disorder.

At this time, we are requesting that only one caregiver per family submit responses. For families with more than one affected child, please submit separate responses per affected child with unique identifiers for each child as outlined in question 2.

This study is approved by the University of California San Francisco (UCSF) Institutional Review Board (IRB #16-19306). Survey data will be collected and store through a safe, secure, and encrypted process. For more information about the study please visit: Caregiver Psychosocial Support

If you have any questions or concerns about this research, please do not hesitate to contact the research coordinator, Jennie Yoo at jennie.yoo@ucsf.edu

Thank you for taking the time to complete this survey about your caregiver experience!

You have selected an option that triggers this survey to end right now.

To save your responses and end the survey, click the 'End Survey' button below. If you have selected the wrong option by accident and/or wish to return to the survey, click the 'Return and Edit Response' button.